"Can I go to Glasgow?" Learnings from patient involvement at the 17th Congress of the International Society for Peritoneal Dialysis (ISPD).
Identifieur interne : 000332 ( Main/Exploration ); précédent : 000331; suivant : 000333"Can I go to Glasgow?" Learnings from patient involvement at the 17th Congress of the International Society for Peritoneal Dialysis (ISPD).
Auteurs : Talia Gutman [Australie] ; Karine E. Manera [Australie] ; Amanda Baumgart [Australie] ; David W. Johnson [Australie] ; Martin Wilkie [Royaume-Uni] ; Neil Boudville [Australie] ; Jonathan C. Craig [Australie] ; Jie Dong [République populaire de Chine] ; Shilpa Jesudason [Australie] ; Rajnish Mehrotra [États-Unis] ; Alicia Neu [États-Unis] ; Jenny I. Shen [États-Unis] ; Wim Van Biesen [Belgique] ; Peter G. Blake [Canada] ; Gillian Brunier [Canada] ; Yeoungjee Cho [Australie] ; Nichole Jefferson [États-Unis] ; Ilan Lenga [Canada] ; Neelem Mann [Canada] ; Asher A. Mendelson [Canada] ; Jeffrey Perl [Canada] ; Rafael Mauricio Sanabria [Colombie] ; Nicole Scholes-Roberston [Australie] ; Daniel Schwartz [Canada] ; Isaac Teitelbaum [États-Unis] ; Allison Tong [Australie]Source :
- Peritoneal dialysis international : journal of the International Society for Peritoneal Dialysis [ 1718-4304 ] ; 2020.
Descripteurs français
- KwdFr :
- Adulte (MeSH), Adulte d'âge moyen (MeSH), Attitude du personnel soignant (MeSH), Congrès comme sujet (MeSH), Dialyse péritonéale (MeSH), Femelle (MeSH), Humains (MeSH), Internationalité (MeSH), Maladies du rein (psychologie), Maladies du rein (thérapie), Mâle (MeSH), Néphrologie (MeSH), Participation des patients (MeSH), Recherche biomédicale (MeSH), Sociétés médicales (MeSH), Sujet âgé (MeSH).
- MESH :
English descriptors
- KwdEn :
- Adult (MeSH), Aged (MeSH), Attitude of Health Personnel (MeSH), Biomedical Research (MeSH), Congresses as Topic (MeSH), Female (MeSH), Humans (MeSH), Internationality (MeSH), Kidney Diseases (psychology), Kidney Diseases (therapy), Male (MeSH), Middle Aged (MeSH), Nephrology (MeSH), Patient Participation (MeSH), Peritoneal Dialysis (MeSH), Societies, Medical (MeSH).
- MESH :
- psychology : Kidney Diseases.
- therapy : Kidney Diseases.
- Adult, Aged, Attitude of Health Personnel, Biomedical Research, Congresses as Topic, Female, Humans, Internationality, Male, Middle Aged, Nephrology, Patient Participation, Peritoneal Dialysis, Societies, Medical.
Abstract
BACKGROUND
Recognition of the discrepancy between the research priorities of patients and health professionals has prompted efforts to involve patients as active contributors in research activities, including scientific conferences. However, there is limited evidence about the experience, challenges, and impacts of patient involvement to inform best practice. This study aims to describe patient and health professional perspectives on patient involvement at the Congress of the International Society for Peritoneal Dialysis (ISPD).
METHODS
Semi-structured interviews were conducted with 14 patients/caregivers and 15 health professionals from six countries who attended ISPD. Interviews were recorded and transcribed verbatim, and transcripts were analyzed thematically.
RESULTS
We identified four themes: protecting and enhancing scientific learning (grounding science in stories, sharing and inspiring new perspectives, distilling the key messages of research presentations, striking a balance between accommodating patients and presenting the science); democratizing access to research (redistributing power, challenging the traditional ownership of knowledge, cultivating self-management through demystifying research); inadequate support for patient/caregiver delegates (lacking purposeful inclusion, challenges in interpreting research findings, soliciting medical advice, difficulty negotiating venue and program, limited financial assistance in attending); and amplifying impact beyond the room (sparking innovation in practice, giving patients and families hope for the future).
CONCLUSIONS
Patient involvement at the ISPD Congress clarified the applicability of research to patient care and self-management, democratized science, and strengthened the potential impact of research. More structured support for patients to help them purposefully articulate their experience in relation to session objectives may enhance their contribution and their own learning experience.
DOI: 10.1177/0896860819880101
PubMed: 32063150
Affiliations:
- Australie, Belgique, Canada, Colombie, Royaume-Uni, République populaire de Chine, États-Unis
- Californie, Colorado, District de Columbia, Maryland, Nouvelle-Galles du Sud, Ontario, Washington (État)
- Pékin, Seattle, Sydney, Toronto
- Université de Sydney, Université de Toronto, Université de Washington
Links toward previous steps (curation, corpus...)
Le document en format XML
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Learnings from patient involvement at the 17th Congress of the International Society for Peritoneal Dialysis (ISPD).</title><author><name sortKey="Gutman, Talia" sort="Gutman, Talia" uniqKey="Gutman T" first="Talia" last="Gutman">Talia Gutman</name><affiliation wicri:level="4"><nlm:affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author><author><name sortKey="Manera, Karine E" sort="Manera, Karine E" uniqKey="Manera K" first="Karine E" last="Manera">Karine E. 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Shen</name><affiliation wicri:level="2"><nlm:affiliation>Division of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Torrance, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Torrance, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Van Biesen, Wim" sort="Van Biesen, Wim" uniqKey="Van Biesen W" first="Wim" last="Van Biesen">Wim Van Biesen</name><affiliation wicri:level="1"><nlm:affiliation>Renal division, Ghent University Hospital, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Renal division, Ghent University Hospital</wicri:regionArea><wicri:noRegion>Ghent University Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Blake, Peter G" sort="Blake, Peter G" uniqKey="Blake P" first="Peter G" last="Blake">Peter G. Blake</name><affiliation wicri:level="1"><nlm:affiliation>Division of Nephrology, Western University, London, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Nephrology, Western University, London, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Brunier, Gillian" sort="Brunier, Gillian" uniqKey="Brunier G" first="Gillian" last="Brunier">Gillian Brunier</name><affiliation wicri:level="1"><nlm:affiliation>Sunnybrook Research Institute, Toronto, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Sunnybrook Research Institute, Toronto, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Cho, Yeoungjee" sort="Cho, Yeoungjee" uniqKey="Cho Y" first="Yeoungjee" last="Cho">Yeoungjee Cho</name><affiliation wicri:level="1"><nlm:affiliation>Department of Nephrology, Princess Alexandra Hospital, University of Queensland, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Nephrology, Princess Alexandra Hospital, University of Queensland, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Jefferson, Nichole" sort="Jefferson, Nichole" uniqKey="Jefferson N" first="Nichole" last="Jefferson">Nichole Jefferson</name><affiliation wicri:level="2"><nlm:affiliation>Patient and Family Partnership Council, Kidney Health Initiative, American Society of Nephrology, Washington, DC, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Patient and Family Partnership Council, Kidney Health Initiative, American Society of Nephrology, Washington, DC</wicri:regionArea><placeName><region type="state">District de Columbia</region></placeName></affiliation></author><author><name sortKey="Lenga, Ilan" sort="Lenga, Ilan" uniqKey="Lenga I" first="Ilan" last="Lenga">Ilan Lenga</name><affiliation wicri:level="1"><nlm:affiliation>Division of Nephrology, Lakeridge Health, Oshawa, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Nephrology, Lakeridge Health, Oshawa, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Mann, Neelem" sort="Mann, Neelem" uniqKey="Mann N" first="Neelem" last="Mann">Neelem Mann</name><affiliation wicri:level="1"><nlm:affiliation>Fraser Health Renal Program, Abbotsford Regional Hospital and Cancer Centre, Abbotsford, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Fraser Health Renal Program, Abbotsford Regional Hospital and Cancer Centre, Abbotsford</wicri:regionArea><wicri:noRegion>Abbotsford</wicri:noRegion></affiliation></author><author><name sortKey="Mendelson, Asher A" sort="Mendelson, Asher A" uniqKey="Mendelson A" first="Asher A" last="Mendelson">Asher A. Mendelson</name><affiliation wicri:level="1"><nlm:affiliation>Department of Medical Biophysics, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medical Biophysics, Schulich School of Medicine and Dentistry, Western University, London, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Perl, Jeffrey" sort="Perl, Jeffrey" uniqKey="Perl J" first="Jeffrey" last="Perl">Jeffrey Perl</name><affiliation wicri:level="4"><nlm:affiliation>Division of Nephrology, Department of Medicine, St. Michael's Hospital, University of Toronto, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Nephrology, Department of Medicine, St. Michael's Hospital, University of Toronto, Ontario</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Sanabria, Rafael Mauricio" sort="Sanabria, Rafael Mauricio" uniqKey="Sanabria R" first="Rafael Mauricio" last="Sanabria">Rafael Mauricio Sanabria</name><affiliation wicri:level="1"><nlm:affiliation>Renal Therapy Services Latin America, Bogota, Colombia.</nlm:affiliation><country xml:lang="fr">Colombie</country><wicri:regionArea>Renal Therapy Services Latin America, Bogota</wicri:regionArea><wicri:noRegion>Bogota</wicri:noRegion></affiliation></author><author><name sortKey="Scholes Roberston, Nicole" sort="Scholes Roberston, Nicole" uniqKey="Scholes Roberston N" first="Nicole" last="Scholes-Roberston">Nicole Scholes-Roberston</name><affiliation wicri:level="4"><nlm:affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) Consumer Advisory Board, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) Consumer Advisory Board</wicri:regionArea></affiliation></author><author><name sortKey="Schwartz, Daniel" sort="Schwartz, Daniel" uniqKey="Schwartz D" first="Daniel" last="Schwartz">Daniel Schwartz</name><affiliation wicri:level="1"><nlm:affiliation>Faculty of Medicine, University of British Colombia, Fraser Health Home Peritoneal Dialysis Program, British Colombia, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Faculty of Medicine, University of British Colombia, Fraser Health Home Peritoneal Dialysis Program, British Colombia</wicri:regionArea><wicri:noRegion>British Colombia</wicri:noRegion></affiliation></author><author><name sortKey="Teitelbaum, Isaac" sort="Teitelbaum, Isaac" uniqKey="Teitelbaum I" first="Isaac" last="Teitelbaum">Isaac Teitelbaum</name><affiliation wicri:level="2"><nlm:affiliation>University of Colorado Denver - Anschutz Medical Campus, CO, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Colorado Denver - Anschutz Medical Campus, CO</wicri:regionArea><placeName><region type="state">Colorado</region></placeName></affiliation></author><author><name sortKey="Tong, Allison" sort="Tong, Allison" uniqKey="Tong A" first="Allison" last="Tong">Allison Tong</name><affiliation wicri:level="4"><nlm:affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2020">2020</date><idno type="RBID">pubmed:32063150</idno><idno type="pmid">32063150</idno><idno type="doi">10.1177/0896860819880101</idno><idno type="wicri:Area/Main/Corpus">000229</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Corpus" wicri:corpus="PubMed">000229</idno><idno type="wicri:Area/Main/Curation">000229</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Curation">000229</idno><idno type="wicri:Area/Main/Exploration">000229</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">"Can I go to Glasgow?" Learnings from patient involvement at the 17th Congress of the International Society for Peritoneal Dialysis (ISPD).</title><author><name sortKey="Gutman, Talia" sort="Gutman, Talia" uniqKey="Gutman T" first="Talia" last="Gutman">Talia Gutman</name><affiliation wicri:level="4"><nlm:affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author><author><name sortKey="Manera, Karine E" sort="Manera, Karine E" uniqKey="Manera K" first="Karine E" last="Manera">Karine E. Manera</name><affiliation wicri:level="4"><nlm:affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author><author><name sortKey="Baumgart, Amanda" sort="Baumgart, Amanda" uniqKey="Baumgart A" first="Amanda" last="Baumgart">Amanda Baumgart</name><affiliation wicri:level="4"><nlm:affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author><author><name sortKey="Johnson, David W" sort="Johnson, David W" uniqKey="Johnson D" first="David W" last="Johnson">David W. Johnson</name><affiliation wicri:level="1"><nlm:affiliation>Department of Nephrology, Princess Alexandra Hospital, University of Queensland, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Nephrology, Princess Alexandra Hospital, University of Queensland, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Australasian Kidney Trials Network, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Australasian Kidney Trials Network, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Translational Research Institute, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Translational Research Institute, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Wilkie, Martin" sort="Wilkie, Martin" uniqKey="Wilkie M" first="Martin" last="Wilkie">Martin Wilkie</name><affiliation wicri:level="1"><nlm:affiliation>Sheffield Teaching Hospitals, UK.</nlm:affiliation><country xml:lang="fr">Royaume-Uni</country><wicri:regionArea>Sheffield Teaching Hospitals</wicri:regionArea></affiliation></author><author><name sortKey="Boudville, Neil" sort="Boudville, Neil" uniqKey="Boudville N" first="Neil" last="Boudville">Neil Boudville</name><affiliation wicri:level="1"><nlm:affiliation>Medical School, University of Western Australia, Crawley, Western Australia, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Medical School, University of Western Australia, Crawley, Western Australia</wicri:regionArea><wicri:noRegion>Western Australia</wicri:noRegion></affiliation></author><author><name sortKey="Craig, Jonathan C" sort="Craig, Jonathan C" uniqKey="Craig J" first="Jonathan C" last="Craig">Jonathan C. Craig</name><affiliation wicri:level="1"><nlm:affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>College of Medicine and Public Health, Flinders University, Bedford Park, South Australia, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>College of Medicine and Public Health, Flinders University, Bedford Park, South Australia</wicri:regionArea><wicri:noRegion>South Australia</wicri:noRegion></affiliation></author><author><name sortKey="Dong, Jie" sort="Dong, Jie" uniqKey="Dong J" first="Jie" last="Dong">Jie Dong</name><affiliation wicri:level="3"><nlm:affiliation>Renal Division, Department of Medicine, Peking University First Hospital, Beijing, China.</nlm:affiliation><country xml:lang="fr">République populaire de Chine</country><wicri:regionArea>Renal Division, Department of Medicine, Peking University First Hospital, Beijing</wicri:regionArea><placeName><settlement type="city">Pékin</settlement></placeName></affiliation></author><author><name sortKey="Jesudason, Shilpa" sort="Jesudason, Shilpa" uniqKey="Jesudason S" first="Shilpa" last="Jesudason">Shilpa Jesudason</name><affiliation wicri:level="1"><nlm:affiliation>Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, South Australia, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, South Australia</wicri:regionArea><wicri:noRegion>South Australia</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Faculty of Health and Medical Sciences, University of Adelaide, South Australia, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Faculty of Health and Medical Sciences, University of Adelaide, South Australia</wicri:regionArea><wicri:noRegion>South Australia</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Kidney Health Australia, Adelaide, South Australia, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Kidney Health Australia, Adelaide, South Australia</wicri:regionArea><wicri:noRegion>South Australia</wicri:noRegion></affiliation></author><author><name sortKey="Mehrotra, Rajnish" sort="Mehrotra, Rajnish" uniqKey="Mehrotra R" first="Rajnish" last="Mehrotra">Rajnish Mehrotra</name><affiliation wicri:level="4"><nlm:affiliation>Kidney Research Institute and Harborview Medical Center, Division of Nephrology/Department of Medicine, University of Washington, Seattle, WA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Kidney Research Institute and Harborview Medical Center, Division of Nephrology/Department of Medicine, University of Washington, Seattle, WA</wicri:regionArea><placeName><region type="state">Washington (État)</region><settlement type="city">Seattle</settlement></placeName><orgName type="university">Université de Washington</orgName></affiliation></author><author><name sortKey="Neu, Alicia" sort="Neu, Alicia" uniqKey="Neu A" first="Alicia" last="Neu">Alicia Neu</name><affiliation wicri:level="2"><nlm:affiliation>The Johns Hopkins University School of Medicine, Baltimore, MD, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>The Johns Hopkins University School of Medicine, Baltimore, MD</wicri:regionArea><placeName><region type="state">Maryland</region></placeName></affiliation></author><author><name sortKey="Shen, Jenny I" sort="Shen, Jenny I" uniqKey="Shen J" first="Jenny I" last="Shen">Jenny I. Shen</name><affiliation wicri:level="2"><nlm:affiliation>Division of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Torrance, CA, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Division of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Torrance, CA</wicri:regionArea><placeName><region type="state">Californie</region></placeName></affiliation></author><author><name sortKey="Van Biesen, Wim" sort="Van Biesen, Wim" uniqKey="Van Biesen W" first="Wim" last="Van Biesen">Wim Van Biesen</name><affiliation wicri:level="1"><nlm:affiliation>Renal division, Ghent University Hospital, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Renal division, Ghent University Hospital</wicri:regionArea><wicri:noRegion>Ghent University Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Blake, Peter G" sort="Blake, Peter G" uniqKey="Blake P" first="Peter G" last="Blake">Peter G. Blake</name><affiliation wicri:level="1"><nlm:affiliation>Division of Nephrology, Western University, London, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Nephrology, Western University, London, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Brunier, Gillian" sort="Brunier, Gillian" uniqKey="Brunier G" first="Gillian" last="Brunier">Gillian Brunier</name><affiliation wicri:level="1"><nlm:affiliation>Sunnybrook Research Institute, Toronto, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Sunnybrook Research Institute, Toronto, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Cho, Yeoungjee" sort="Cho, Yeoungjee" uniqKey="Cho Y" first="Yeoungjee" last="Cho">Yeoungjee Cho</name><affiliation wicri:level="1"><nlm:affiliation>Department of Nephrology, Princess Alexandra Hospital, University of Queensland, Queensland, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Department of Nephrology, Princess Alexandra Hospital, University of Queensland, Queensland</wicri:regionArea><wicri:noRegion>Queensland</wicri:noRegion></affiliation></author><author><name sortKey="Jefferson, Nichole" sort="Jefferson, Nichole" uniqKey="Jefferson N" first="Nichole" last="Jefferson">Nichole Jefferson</name><affiliation wicri:level="2"><nlm:affiliation>Patient and Family Partnership Council, Kidney Health Initiative, American Society of Nephrology, Washington, DC, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Patient and Family Partnership Council, Kidney Health Initiative, American Society of Nephrology, Washington, DC</wicri:regionArea><placeName><region type="state">District de Columbia</region></placeName></affiliation></author><author><name sortKey="Lenga, Ilan" sort="Lenga, Ilan" uniqKey="Lenga I" first="Ilan" last="Lenga">Ilan Lenga</name><affiliation wicri:level="1"><nlm:affiliation>Division of Nephrology, Lakeridge Health, Oshawa, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Nephrology, Lakeridge Health, Oshawa, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Mann, Neelem" sort="Mann, Neelem" uniqKey="Mann N" first="Neelem" last="Mann">Neelem Mann</name><affiliation wicri:level="1"><nlm:affiliation>Fraser Health Renal Program, Abbotsford Regional Hospital and Cancer Centre, Abbotsford, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Fraser Health Renal Program, Abbotsford Regional Hospital and Cancer Centre, Abbotsford</wicri:regionArea><wicri:noRegion>Abbotsford</wicri:noRegion></affiliation></author><author><name sortKey="Mendelson, Asher A" sort="Mendelson, Asher A" uniqKey="Mendelson A" first="Asher A" last="Mendelson">Asher A. Mendelson</name><affiliation wicri:level="1"><nlm:affiliation>Department of Medical Biophysics, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Department of Medical Biophysics, Schulich School of Medicine and Dentistry, Western University, London, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Perl, Jeffrey" sort="Perl, Jeffrey" uniqKey="Perl J" first="Jeffrey" last="Perl">Jeffrey Perl</name><affiliation wicri:level="4"><nlm:affiliation>Division of Nephrology, Department of Medicine, St. Michael's Hospital, University of Toronto, Ontario, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Nephrology, Department of Medicine, St. Michael's Hospital, University of Toronto, Ontario</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Sanabria, Rafael Mauricio" sort="Sanabria, Rafael Mauricio" uniqKey="Sanabria R" first="Rafael Mauricio" last="Sanabria">Rafael Mauricio Sanabria</name><affiliation wicri:level="1"><nlm:affiliation>Renal Therapy Services Latin America, Bogota, Colombia.</nlm:affiliation><country xml:lang="fr">Colombie</country><wicri:regionArea>Renal Therapy Services Latin America, Bogota</wicri:regionArea><wicri:noRegion>Bogota</wicri:noRegion></affiliation></author><author><name sortKey="Scholes Roberston, Nicole" sort="Scholes Roberston, Nicole" uniqKey="Scholes Roberston N" first="Nicole" last="Scholes-Roberston">Nicole Scholes-Roberston</name><affiliation wicri:level="4"><nlm:affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) Consumer Advisory Board, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) Consumer Advisory Board</wicri:regionArea></affiliation></author><author><name sortKey="Schwartz, Daniel" sort="Schwartz, Daniel" uniqKey="Schwartz D" first="Daniel" last="Schwartz">Daniel Schwartz</name><affiliation wicri:level="1"><nlm:affiliation>Faculty of Medicine, University of British Colombia, Fraser Health Home Peritoneal Dialysis Program, British Colombia, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Faculty of Medicine, University of British Colombia, Fraser Health Home Peritoneal Dialysis Program, British Colombia</wicri:regionArea><wicri:noRegion>British Colombia</wicri:noRegion></affiliation></author><author><name sortKey="Teitelbaum, Isaac" sort="Teitelbaum, Isaac" uniqKey="Teitelbaum I" first="Isaac" last="Teitelbaum">Isaac Teitelbaum</name><affiliation wicri:level="2"><nlm:affiliation>University of Colorado Denver - Anschutz Medical Campus, CO, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>University of Colorado Denver - Anschutz Medical Campus, CO</wicri:regionArea><placeName><region type="state">Colorado</region></placeName></affiliation></author><author><name sortKey="Tong, Allison" sort="Tong, Allison" uniqKey="Tong A" first="Allison" last="Tong">Allison Tong</name><affiliation wicri:level="4"><nlm:affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales</wicri:regionArea><orgName type="university">Université de Sydney</orgName><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region></placeName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales</wicri:regionArea><wicri:noRegion>New South Wales</wicri:noRegion></affiliation></author></analytic><series><title level="j">Peritoneal dialysis international : journal of the International Society for Peritoneal Dialysis</title><idno type="eISSN">1718-4304</idno><imprint><date when="2020" type="published">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult (MeSH)</term><term>Aged (MeSH)</term><term>Attitude of Health Personnel (MeSH)</term><term>Biomedical Research (MeSH)</term><term>Congresses as Topic (MeSH)</term><term>Female (MeSH)</term><term>Humans (MeSH)</term><term>Internationality (MeSH)</term><term>Kidney Diseases (psychology)</term><term>Kidney Diseases (therapy)</term><term>Male (MeSH)</term><term>Middle Aged (MeSH)</term><term>Nephrology (MeSH)</term><term>Patient Participation (MeSH)</term><term>Peritoneal Dialysis (MeSH)</term><term>Societies, Medical (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adulte (MeSH)</term><term>Adulte d'âge moyen (MeSH)</term><term>Attitude du personnel soignant (MeSH)</term><term>Congrès comme sujet (MeSH)</term><term>Dialyse péritonéale (MeSH)</term><term>Femelle (MeSH)</term><term>Humains (MeSH)</term><term>Internationalité (MeSH)</term><term>Maladies du rein (psychologie)</term><term>Maladies du rein (thérapie)</term><term>Mâle (MeSH)</term><term>Néphrologie (MeSH)</term><term>Participation des patients (MeSH)</term><term>Recherche biomédicale (MeSH)</term><term>Sociétés médicales (MeSH)</term><term>Sujet âgé (MeSH)</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Maladies du rein</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Kidney Diseases</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Kidney Diseases</term></keywords><keywords scheme="MESH" qualifier="thérapie" xml:lang="fr"><term>Maladies du rein</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Aged</term><term>Attitude of Health Personnel</term><term>Biomedical Research</term><term>Congresses as Topic</term><term>Female</term><term>Humans</term><term>Internationality</term><term>Male</term><term>Middle Aged</term><term>Nephrology</term><term>Patient Participation</term><term>Peritoneal Dialysis</term><term>Societies, Medical</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adulte</term><term>Adulte d'âge moyen</term><term>Attitude du personnel soignant</term><term>Congrès comme sujet</term><term>Dialyse péritonéale</term><term>Femelle</term><term>Humains</term><term>Internationalité</term><term>Mâle</term><term>Néphrologie</term><term>Participation des patients</term><term>Recherche biomédicale</term><term>Sociétés médicales</term><term>Sujet âgé</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>BACKGROUND</b></p><p>Recognition of the discrepancy between the research priorities of patients and health professionals has prompted efforts to involve patients as active contributors in research activities, including scientific conferences. However, there is limited evidence about the experience, challenges, and impacts of patient involvement to inform best practice. This study aims to describe patient and health professional perspectives on patient involvement at the Congress of the International Society for Peritoneal Dialysis (ISPD).</p></div><div type="abstract" xml:lang="en"><p><b>METHODS</b></p><p>Semi-structured interviews were conducted with 14 patients/caregivers and 15 health professionals from six countries who attended ISPD. Interviews were recorded and transcribed verbatim, and transcripts were analyzed thematically.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>We identified four themes: protecting and enhancing scientific learning (grounding science in stories, sharing and inspiring new perspectives, distilling the key messages of research presentations, striking a balance between accommodating patients and presenting the science); democratizing access to research (redistributing power, challenging the traditional ownership of knowledge, cultivating self-management through demystifying research); inadequate support for patient/caregiver delegates (lacking purposeful inclusion, challenges in interpreting research findings, soliciting medical advice, difficulty negotiating venue and program, limited financial assistance in attending); and amplifying impact beyond the room (sparking innovation in practice, giving patients and families hope for the future).</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSIONS</b></p><p>Patient involvement at the ISPD Congress clarified the applicability of research to patient care and self-management, democratized science, and strengthened the potential impact of research. More structured support for patients to help them purposefully articulate their experience in relation to session objectives may enhance their contribution and their own learning experience.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">32063150</PMID><DateCompleted><Year>2021</Year><Month>03</Month><Day>02</Day></DateCompleted><DateRevised><Year>2021</Year><Month>03</Month><Day>02</Day></DateRevised><Article PubModel="Print"><Journal><ISSN IssnType="Electronic">1718-4304</ISSN><JournalIssue CitedMedium="Internet"><Volume>40</Volume><Issue>1</Issue><PubDate><Year>2020</Year><Month>01</Month></PubDate></JournalIssue><Title>Peritoneal dialysis international : journal of the International Society for Peritoneal Dialysis</Title><ISOAbbreviation>Perit Dial Int</ISOAbbreviation></Journal><ArticleTitle>"Can I go to Glasgow?" Learnings from patient involvement at the 17th Congress of the International Society for Peritoneal Dialysis (ISPD).</ArticleTitle><Pagination><MedlinePgn>12-25</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1177/0896860819880101</ELocationID><Abstract><AbstractText Label="BACKGROUND">Recognition of the discrepancy between the research priorities of patients and health professionals has prompted efforts to involve patients as active contributors in research activities, including scientific conferences. However, there is limited evidence about the experience, challenges, and impacts of patient involvement to inform best practice. This study aims to describe patient and health professional perspectives on patient involvement at the Congress of the International Society for Peritoneal Dialysis (ISPD).</AbstractText><AbstractText Label="METHODS">Semi-structured interviews were conducted with 14 patients/caregivers and 15 health professionals from six countries who attended ISPD. Interviews were recorded and transcribed verbatim, and transcripts were analyzed thematically.</AbstractText><AbstractText Label="RESULTS">We identified four themes: protecting and enhancing scientific learning (grounding science in stories, sharing and inspiring new perspectives, distilling the key messages of research presentations, striking a balance between accommodating patients and presenting the science); democratizing access to research (redistributing power, challenging the traditional ownership of knowledge, cultivating self-management through demystifying research); inadequate support for patient/caregiver delegates (lacking purposeful inclusion, challenges in interpreting research findings, soliciting medical advice, difficulty negotiating venue and program, limited financial assistance in attending); and amplifying impact beyond the room (sparking innovation in practice, giving patients and families hope for the future).</AbstractText><AbstractText Label="CONCLUSIONS">Patient involvement at the ISPD Congress clarified the applicability of research to patient care and self-management, democratized science, and strengthened the potential impact of research. More structured support for patients to help them purposefully articulate their experience in relation to session objectives may enhance their contribution and their own learning experience.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Gutman</LastName><ForeName>Talia</ForeName><Initials>T</Initials><AffiliationInfo><Affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Manera</LastName><ForeName>Karine E</ForeName><Initials>KE</Initials><AffiliationInfo><Affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Baumgart</LastName><ForeName>Amanda</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Johnson</LastName><ForeName>David W</ForeName><Initials>DW</Initials><AffiliationInfo><Affiliation>Department of Nephrology, Princess Alexandra Hospital, University of Queensland, Queensland, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Australasian Kidney Trials Network, Queensland, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Translational Research Institute, Queensland, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Wilkie</LastName><ForeName>Martin</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Sheffield Teaching Hospitals, UK.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Boudville</LastName><ForeName>Neil</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Medical School, University of Western Australia, Crawley, Western Australia, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Craig</LastName><ForeName>Jonathan C</ForeName><Initials>JC</Initials><AffiliationInfo><Affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>College of Medicine and Public Health, Flinders University, Bedford Park, South Australia, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Dong</LastName><ForeName>Jie</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Renal Division, Department of Medicine, Peking University First Hospital, Beijing, China.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Jesudason</LastName><ForeName>Shilpa</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, South Australia, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Faculty of Health and Medical Sciences, University of Adelaide, South Australia, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Kidney Health Australia, Adelaide, South Australia, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mehrotra</LastName><ForeName>Rajnish</ForeName><Initials>R</Initials><AffiliationInfo><Affiliation>Kidney Research Institute and Harborview Medical Center, Division of Nephrology/Department of Medicine, University of Washington, Seattle, WA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Neu</LastName><ForeName>Alicia</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>The Johns Hopkins University School of Medicine, Baltimore, MD, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Shen</LastName><ForeName>Jenny I</ForeName><Initials>JI</Initials><AffiliationInfo><Affiliation>Division of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Torrance, CA, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Van Biesen</LastName><ForeName>Wim</ForeName><Initials>W</Initials><AffiliationInfo><Affiliation>Renal division, Ghent University Hospital, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Blake</LastName><ForeName>Peter G</ForeName><Initials>PG</Initials><AffiliationInfo><Affiliation>Division of Nephrology, Western University, London, Ontario, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Brunier</LastName><ForeName>Gillian</ForeName><Initials>G</Initials><AffiliationInfo><Affiliation>Sunnybrook Research Institute, Toronto, Ontario, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Cho</LastName><ForeName>Yeoungjee</ForeName><Initials>Y</Initials><AffiliationInfo><Affiliation>Department of Nephrology, Princess Alexandra Hospital, University of Queensland, Queensland, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Jefferson</LastName><ForeName>Nichole</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Patient and Family Partnership Council, Kidney Health Initiative, American Society of Nephrology, Washington, DC, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lenga</LastName><ForeName>Ilan</ForeName><Initials>I</Initials><AffiliationInfo><Affiliation>Division of Nephrology, Lakeridge Health, Oshawa, Ontario, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mann</LastName><ForeName>Neelem</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Fraser Health Renal Program, Abbotsford Regional Hospital and Cancer Centre, Abbotsford, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mendelson</LastName><ForeName>Asher A</ForeName><Initials>AA</Initials><AffiliationInfo><Affiliation>Department of Medical Biophysics, Schulich School of Medicine and Dentistry, Western University, London, Ontario, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Perl</LastName><ForeName>Jeffrey</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Division of Nephrology, Department of Medicine, St. Michael's Hospital, University of Toronto, Ontario, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Sanabria</LastName><ForeName>Rafael Mauricio</ForeName><Initials>RM</Initials><AffiliationInfo><Affiliation>Renal Therapy Services Latin America, Bogota, Colombia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Scholes-Roberston</LastName><ForeName>Nicole</ForeName><Initials>N</Initials><AffiliationInfo><Affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Better Evidence and Translation in Chronic Kidney Disease (BEAT-CKD) Consumer Advisory Board, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Schwartz</LastName><ForeName>Daniel</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Faculty of Medicine, University of British Colombia, Fraser Health Home Peritoneal Dialysis Program, British Colombia, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Teitelbaum</LastName><ForeName>Isaac</ForeName><Initials>I</Initials><AffiliationInfo><Affiliation>University of Colorado Denver - Anschutz Medical Campus, CO, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Tong</LastName><ForeName>Allison</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Sydney School of Public Health, The University of Sydney, Camperdown, New South Wales, Australia.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType></PublicationTypeList></Article><MedlineJournalInfo><Country>United States</Country><MedlineTA>Perit Dial Int</MedlineTA><NlmUniqueID>8904033</NlmUniqueID><ISSNLinking>0896-8608</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000368" MajorTopicYN="N">Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D001291" MajorTopicYN="Y">Attitude of Health Personnel</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D035843" MajorTopicYN="Y">Biomedical Research</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D003226" MajorTopicYN="Y">Congresses as Topic</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D038622" MajorTopicYN="N">Internationality</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D007674" MajorTopicYN="N">Kidney Diseases</DescriptorName><QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName><QualifierName UI="Q000628" MajorTopicYN="N">therapy</QualifierName></MeshHeading><MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008875" MajorTopicYN="N">Middle Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D009398" MajorTopicYN="N">Nephrology</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010358" MajorTopicYN="Y">Patient Participation</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D010530" MajorTopicYN="Y">Peritoneal Dialysis</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D012955" MajorTopicYN="Y">Societies, Medical</DescriptorName></MeshHeading></MeshHeadingList><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="Y">Caregiver involvement</Keyword><Keyword MajorTopicYN="Y">conferences</Keyword><Keyword MajorTopicYN="Y">consumer involvement</Keyword><Keyword MajorTopicYN="Y">patient involvement</Keyword><Keyword MajorTopicYN="Y">patients included</Keyword><Keyword MajorTopicYN="Y">scientific meetings</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="entrez"><Year>2020</Year><Month>2</Month><Day>18</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="pubmed"><Year>2020</Year><Month>2</Month><Day>18</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2021</Year><Month>3</Month><Day>3</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">32063150</ArticleId><ArticleId IdType="doi">10.1177/0896860819880101</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Australie</li><li>Belgique</li><li>Canada</li><li>Colombie</li><li>Royaume-Uni</li><li>République populaire de Chine</li><li>États-Unis</li></country><region><li>Californie</li><li>Colorado</li><li>District de Columbia</li><li>Maryland</li><li>Nouvelle-Galles du Sud</li><li>Ontario</li><li>Washington (État)</li></region><settlement><li>Pékin</li><li>Seattle</li><li>Sydney</li><li>Toronto</li></settlement><orgName><li>Université de Sydney</li><li>Université de Toronto</li><li>Université de Washington</li></orgName></list><tree><country name="Australie"><region name="Nouvelle-Galles du Sud"><name sortKey="Gutman, Talia" sort="Gutman, Talia" uniqKey="Gutman T" first="Talia" last="Gutman">Talia Gutman</name></region><name sortKey="Baumgart, Amanda" sort="Baumgart, Amanda" uniqKey="Baumgart A" first="Amanda" last="Baumgart">Amanda Baumgart</name><name sortKey="Baumgart, Amanda" sort="Baumgart, Amanda" uniqKey="Baumgart A" first="Amanda" last="Baumgart">Amanda Baumgart</name><name sortKey="Boudville, Neil" sort="Boudville, Neil" uniqKey="Boudville N" first="Neil" last="Boudville">Neil Boudville</name><name sortKey="Cho, Yeoungjee" sort="Cho, Yeoungjee" uniqKey="Cho Y" first="Yeoungjee" last="Cho">Yeoungjee Cho</name><name sortKey="Craig, Jonathan C" sort="Craig, Jonathan C" uniqKey="Craig J" first="Jonathan C" last="Craig">Jonathan C. Craig</name><name sortKey="Craig, Jonathan C" sort="Craig, Jonathan C" uniqKey="Craig J" first="Jonathan C" last="Craig">Jonathan C. Craig</name><name sortKey="Gutman, Talia" sort="Gutman, Talia" uniqKey="Gutman T" first="Talia" last="Gutman">Talia Gutman</name><name sortKey="Jesudason, Shilpa" sort="Jesudason, Shilpa" uniqKey="Jesudason S" first="Shilpa" last="Jesudason">Shilpa Jesudason</name><name sortKey="Jesudason, Shilpa" sort="Jesudason, Shilpa" uniqKey="Jesudason S" first="Shilpa" last="Jesudason">Shilpa Jesudason</name><name sortKey="Jesudason, Shilpa" sort="Jesudason, Shilpa" uniqKey="Jesudason S" first="Shilpa" last="Jesudason">Shilpa Jesudason</name><name sortKey="Johnson, David W" sort="Johnson, David W" uniqKey="Johnson D" first="David W" last="Johnson">David W. Johnson</name><name sortKey="Johnson, David W" sort="Johnson, David W" uniqKey="Johnson D" first="David W" last="Johnson">David W. Johnson</name><name sortKey="Johnson, David W" sort="Johnson, David W" uniqKey="Johnson D" first="David W" last="Johnson">David W. Johnson</name><name sortKey="Manera, Karine E" sort="Manera, Karine E" uniqKey="Manera K" first="Karine E" last="Manera">Karine E. Manera</name><name sortKey="Manera, Karine E" sort="Manera, Karine E" uniqKey="Manera K" first="Karine E" last="Manera">Karine E. Manera</name><name sortKey="Scholes Roberston, Nicole" sort="Scholes Roberston, Nicole" uniqKey="Scholes Roberston N" first="Nicole" last="Scholes-Roberston">Nicole Scholes-Roberston</name><name sortKey="Scholes Roberston, Nicole" sort="Scholes Roberston, Nicole" uniqKey="Scholes Roberston N" first="Nicole" last="Scholes-Roberston">Nicole Scholes-Roberston</name><name sortKey="Scholes Roberston, Nicole" sort="Scholes Roberston, Nicole" uniqKey="Scholes Roberston N" first="Nicole" last="Scholes-Roberston">Nicole Scholes-Roberston</name><name sortKey="Tong, Allison" sort="Tong, Allison" uniqKey="Tong A" first="Allison" last="Tong">Allison Tong</name><name sortKey="Tong, Allison" sort="Tong, Allison" uniqKey="Tong A" first="Allison" last="Tong">Allison Tong</name></country><country name="Royaume-Uni"><noRegion><name sortKey="Wilkie, Martin" sort="Wilkie, Martin" uniqKey="Wilkie M" first="Martin" last="Wilkie">Martin Wilkie</name></noRegion></country><country name="République populaire de Chine"><noRegion><name sortKey="Dong, Jie" sort="Dong, Jie" uniqKey="Dong J" first="Jie" last="Dong">Jie Dong</name></noRegion></country><country name="États-Unis"><region name="Washington (État)"><name sortKey="Mehrotra, Rajnish" sort="Mehrotra, Rajnish" uniqKey="Mehrotra R" first="Rajnish" last="Mehrotra">Rajnish Mehrotra</name></region><name sortKey="Jefferson, Nichole" sort="Jefferson, Nichole" uniqKey="Jefferson N" first="Nichole" last="Jefferson">Nichole Jefferson</name><name sortKey="Neu, Alicia" sort="Neu, Alicia" uniqKey="Neu A" first="Alicia" last="Neu">Alicia Neu</name><name sortKey="Shen, Jenny I" sort="Shen, Jenny I" uniqKey="Shen J" first="Jenny I" last="Shen">Jenny I. Shen</name><name sortKey="Teitelbaum, Isaac" sort="Teitelbaum, Isaac" uniqKey="Teitelbaum I" first="Isaac" last="Teitelbaum">Isaac Teitelbaum</name></country><country name="Belgique"><noRegion><name sortKey="Van Biesen, Wim" sort="Van Biesen, Wim" uniqKey="Van Biesen W" first="Wim" last="Van Biesen">Wim Van Biesen</name></noRegion></country><country name="Canada"><noRegion><name sortKey="Blake, Peter G" sort="Blake, Peter G" uniqKey="Blake P" first="Peter G" last="Blake">Peter G. Blake</name></noRegion><name sortKey="Brunier, Gillian" sort="Brunier, Gillian" uniqKey="Brunier G" first="Gillian" last="Brunier">Gillian Brunier</name><name sortKey="Lenga, Ilan" sort="Lenga, Ilan" uniqKey="Lenga I" first="Ilan" last="Lenga">Ilan Lenga</name><name sortKey="Mann, Neelem" sort="Mann, Neelem" uniqKey="Mann N" first="Neelem" last="Mann">Neelem Mann</name><name sortKey="Mendelson, Asher A" sort="Mendelson, Asher A" uniqKey="Mendelson A" first="Asher A" last="Mendelson">Asher A. Mendelson</name><name sortKey="Perl, Jeffrey" sort="Perl, Jeffrey" uniqKey="Perl J" first="Jeffrey" last="Perl">Jeffrey Perl</name><name sortKey="Schwartz, Daniel" sort="Schwartz, Daniel" uniqKey="Schwartz D" first="Daniel" last="Schwartz">Daniel Schwartz</name></country><country name="Colombie"><noRegion><name sortKey="Sanabria, Rafael Mauricio" sort="Sanabria, Rafael Mauricio" uniqKey="Sanabria R" first="Rafael Mauricio" last="Sanabria">Rafael Mauricio Sanabria</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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